Many kids with grade 4 and 5 CP have feeding tubes. I am always amazed at how connective tissue targeting therapies can help these children on their journey to eating by themselves. However, not all children are able to make this step. While this can be disappointing to parents, I always feel that these therapies … Continue reading Tubefeeding, nutrition and real food mealtimes
Everyone seems to be an expert on nutrition these days, and some of these experts are particularly wacky. When I moved from "I'll give Emma anything as long as she eats something" to "what can I feed her that can help her heal?" I learned a huge amount. It's taken me several years, though. I … Continue reading Feeding older children with CP. Avoid Dairy? Avoid Wheat? Food intolerance tests?
As my regular readers will know, I want to share as much of the information I've learned as possible so you can benefit from my research. So in this post about feeding a baby with a brain injury, I want to start by highlighting why I think it is so important to address inflammation within … Continue reading Feeding brain injured infants. Getting off to a good start and a letter to my younger self.
Teaching Emma to feed has been one of the biggest challenges that we faced and before I detail my approach, I want to acknowledge that every parent with a child with CP faces his or her own eating challenges. Every child has a different level of disability or functionality, so each parent will need to … Continue reading Teaching Emma how to feed. Tips and techniques I used.
I divided the challenges of feeding and nutrition in CP into two branches; the mechanics involved in eating and the dysregulation of the body. In the beginning, I felt daunted by the whole idea of optimizing Emma's nutrition. The obstacles we faced were overwhelming. I felt like one of the hobbits facing a dark warrior … Continue reading The main nutritional issues in CP: Feeding and Nutrient uptake challenges
The drastic start to feeding a child with CP Feeding is a nightmare that never seems to end when your child has CP. There are so many obstacles. Where do I begin? A few hours after the birth of Emma, I woke up in ICU. I was shocked to find an oxygen tube connected to … Continue reading Nutrition and CP: My long term approach to feeding my child
My son was four years old when Emma was born. My son was four when he met his little sister. In the early years - and even now - it was hard to maintain a balanced life that gave him a sense of normality. My husband and I try our darndest to give him a … Continue reading How to live a balanced life when a child has CP