Inclusive Living

How to help your special needs child feel like they’re part of society Few things hurt as much as seeing the world shun your child. This week I found myself thinking about the role of friends as I was trying to work out how I can facilitate Emma’s inclusion into “normal” life. A life that … Continue reading Inclusive Living

An Interview with Sonja Higham from Speak2Me on Assistive and Augmentative Communication for CP kids with speech challenges

What is AAC and how does it work? Sonja Higham from Speak2Me in Cape Town guided me through the different types of assistive communication What is AAC and how is it used?? Augmentative and alternative communication (AAC) is an umbrella term for all types of assistive communication. Some people might only need support in communicating … Continue reading An Interview with Sonja Higham from Speak2Me on Assistive and Augmentative Communication for CP kids with speech challenges

Can you prevent Cerebral Palsy? Here’s how Vitamin D could play a powerful role in preventing CP

Like every parent whose premature child has severe Cerebral Palsy, I have spent hours agonizing over the possible causes of my child’s brain injury. Initially we thought her injury was due to the traumatic birth but, truth be told, I found that really hard to believe. During my years as a hospital doctor, I spent … Continue reading Can you prevent Cerebral Palsy? Here’s how Vitamin D could play a powerful role in preventing CP

Curing Cerebral Palsy: why its not just a matter of retraining the neuronal network.

In the past five years since we have been doing connective tissue targeting therapies on Emma, she was finally able to progress. I want to jump for joy every time I look at her because I can just see how far she has come. Today she is attending a school for kids with CP and … Continue reading Curing Cerebral Palsy: why its not just a matter of retraining the neuronal network.

A new chapter: Choosing the best therapy for my CP child – right now

I started writing this blog because I wanted to encourage and inform parents who were living through a similar situation to ours. When I was pregnant with Emma in 2009, I would – like all expectant mothers – talk to my baby. This was a difficult time in our family’s life. There was financial stress … Continue reading A new chapter: Choosing the best therapy for my CP child – right now

Tubefeeding, nutrition and real food mealtimes

Many  kids with grade 4 and 5 CP have feeding tubes.  I am always amazed at how connective tissue targeting therapies can help these children on their journey to eating by themselves. However, not all children are able to make this step. While this can be disappointing to parents, I always feel that these therapies … Continue reading Tubefeeding, nutrition and real food mealtimes

Feeding older children with CP. Avoid Dairy? Avoid Wheat? Food intolerance tests?

Everyone seems to be an expert on nutrition these days, and some of these experts are particularly wacky. When I moved from "I'll give Emma anything as long as she eats something" to "what can I feed her that can help her heal?" I learned a huge amount. It's taken me several years, though. I … Continue reading Feeding older children with CP. Avoid Dairy? Avoid Wheat? Food intolerance tests?