Tubefeeding, nutrition and real food mealtimes

Many  kids with grade 4 and 5 CP have feeding tubes.  I am always amazed at how connective tissue targeting therapies can help these children on their journey to eating by themselves. However, not all children are able to make this step. While this can be disappointing to parents, I always feel that these therapies … Continue reading Tubefeeding, nutrition and real food mealtimes

Feeding older children with CP. Avoid Dairy? Avoid Wheat? Food intolerance tests?

Everyone seems to be an expert on nutrition these days, and some of these experts are particularly wacky. When I moved from "I'll give Emma anything as long as she eats something" to "what can I feed her that can help her heal?" I learned a huge amount. It's taken me several years, though. I … Continue reading Feeding older children with CP. Avoid Dairy? Avoid Wheat? Food intolerance tests?

Feeding brain injured infants. Getting off to a good start and a letter to my younger self.

As my regular readers will know, I want to share as much of the information I've learned as possible so you can benefit from my research. So in this post about feeding a baby with a brain injury, I want to start by highlighting why I think it is so important to address inflammation within … Continue reading Feeding brain injured infants. Getting off to a good start and a letter to my younger self.

The main nutritional issues in CP: Feeding and Nutrient uptake challenges

I divided the challenges of feeding and nutrition in CP into two branches; the mechanics involved in eating and the dysregulation of the body. In the beginning, I felt daunted by the whole idea of optimizing Emma's nutrition. The obstacles we faced were overwhelming. I felt like one of the hobbits facing a dark warrior … Continue reading The main nutritional issues in CP: Feeding and Nutrient uptake challenges